Day 6 : Afternoon Update

12.16 . Update courtesy of Mokie , 3,4 Aunts.

Summary

1. Condition is the same as Monday night with fluctuating heart beats and blood pressure. Blood pressure has gone down to a more manageable number than 100-150 bp last night . Yet , the heart beat has increased to 100-150 beats per minute from the lows of 49 - 80 last night .

Joe the quack doctor's perpective - Perhaps the body needs to have it one way or another to deliver the necessary pressure needed to her whole body . As her upper body's weight is also pressing down , the delivery system has adjusted either by an increased pump intensity or higher blood pressure. Thus , seemed that when one variable is ok, the other one will jump up . Both have its own danger as blood presssure will stress the dead cells and maybe some other body function . But to have a heart that pumps at that rate , also not too good. how long can we jog and maintain that heart rate?

Prayer needs today
1. Heart pump rate and bp to be stablised more.
2. Brain cell deterioration to be taken over by the blood function instead of normal collapsing.

Day 5 : Night Update

Decided to use this avenue to put Ah Poh ( Aunt Chong Kuan Lan's ) condition to the web . Perhaps it maybe a better alternative than phone in providing information for those who needs them.

Anyway , here is Dr Azmi's diagnosis of Ah Poh yesterday night at 8.05 pm. He will be going away after this for a Mercy trip to Banda Acheh and be taken over by cardiologist Dr Song and Dr Abu Bakar ( neurologist )

Summary

1. Condition has slightly improved from Sunday. He uses a electrorod to create pulses and grandma did respond.
2. Heart / blood pressure still in range , but fluctuates. Good indication is that the bp did not continually rise , which may mean that the the brain size did not continue to grow.
3. Current risk -
a . Hemeorrage - the dead tissues may deteriorate and cause internal bleeding.
b. Infection - Seemed that it is a normal occurance in stroke patients. Potential area is in the uninary tract and respiratory track. Dr Azmi has began doses of antibiotics to protect against these possibililties , yet it is a wait and see period.
4. If progress continues , may see sign of reaction from 2nd week onwards.

5. Key note to all visitors

A. DO NOT SHAKE rigorously . Just a pat will do , and no fast , strong movements.
B. As the body's immune system may be down , please do self quarantine and visit when one is sure that no additional germs can be passed.

Ah poh in Hospital

Ah poh's stroke condition has somehow stabalised. The Upper side of the left hemisphere is the one that has been hit by stroke. She is a fighter , never the less. The condition was better on Saturday when Dr Azmi did a scan. However , it went bad on Sunday morning when the affected area swelled. The swelling affected her breathing and heart pump movements. At times , it was severely bad .

But praise to God for the sustainance. He has provided the strength for Shi-Lynn's families to go on. And of course to Ah Poh .

Charlene is backk today . There is at least 2 more days where things may go wrong . Hope Mr Murphy is on a holiday somewhere.

A "Robot" of experience

The physically challenged that we brought to Midvalley Megamall are those who need a wheel chair to move. They are from a centre called Independent Living and Training Centre , Rawang . We were supposed to meet with the them at 1.00 p.m. So , the church youths went about pottering and rushing after our service on Sunday. I think everybody was excited , especially since they contributed energy to earn money to be channeled into this programme. We called that Slave Auction , where youths were 'sold' for a price in return for some work.

So , we rushed to this giant shopping centre braving all kinds of transportation chaos and jams. There is even a jam into the shopping centre and a jam to find a parking. Basically . Queues are everywhere. Maybe even a jam to the loo. My car got there first and we proceeded to the cinema area. While waiting , belanjaed the rest a nice McD ice cream cone. Then the news came that they physically challenged folks are in police station . What!! That was a horrific news , and it turned out that they were involved in an accident . 2 of the 4 cars actually . We paniced , as there are less than 20 minutes to the show.

We looked around and found out that the humongous queue of people waiting to buy tickets are not helping . And while we were planning for this excursion , the management was not very helpful and don't even want to consider and concessions. So , my thought is that it will be hard to change the tickets. Prayed to God that things will work out . So , we went to the side door hopefully to find the 'command centre' of the cinema operator. It looked more like a staircase , so i guess it was not going to happen . And suddenly , one of the youth indicated loudly and pointing at 2 men who just came in . I approached one of them and told the long story. And wow... we got the right guy . He went over to the main ticket selling station and proceeded to help us. One of the kids ran up with the tickets and gave it to the counter girls. They soon put up the offer in the loud speaker system and 27 tickets were snapped up in less than 15 minutes. !! Ngam ngam 27 people who wants 27 tickets .. and that is very hard combination to find. And , they refunded us the exact amount some more.

We then waited for them at the local Burger King . They have good burgers .. and free refills. The younger girls went shopping , but the younger guys who were buying stuff . It's their school holidays of course. We were kinda exhausted by then . Just before 3 , we split off. I went up to check out on the tickets booking for the 3.30 show . They can only help us to book the tickets , but not a permanent yes. The rest went to greet the arriving friends. But like usual , things crop up . The folks were understandbly hungry and some of them went to the loo. So , they decided that they want to eat first instead of watching the movie. We were frantic and do not know what to do . The next shows are pretty late , the youngers ones are a bit more jittery and we will end up very late in the evening. So , with a blank mind went to the counter to see the girl who were helping us. But she has got the 27 tickets printed out with no avenue for changes. But i think it was a blessing at the end cause we need to relay back to them that we just have to watch the show at the stated time. In fact , we think that they opened another cinema just to put us in.

Went with the girl to get some hotdogs , drinks and popcorns for them . I think it cost about RM 120 just for the food. And off again running to the main reception area where i met a guy called Ruben who will be helping us in the arrangement of the seats. It was really a challenge to move in a wheelchair as all of us know . But on that day , we experienced it . And no thanks to some rude Malaysians who are not civil , they took longer than the necessary time. Some of them even cut the cue , or were just plain rude. And we went in pretty late with the last wheel chaired bound person and perhaps blocking some people while trying to arrange things. Got to our seat finally , and were just plain tired out. We watched the "Robot" , a pretty nice show with good moral behind it.

"See a need , fill a need". Hemm ... very sound advice which is incidentally a Christian doctorine. The best part is when one of the robot mimic Britney Spears . Real funny.

We got out of the cinema last to get things reorganised. They decided to have another session of food , and we are somehow very obliging . So , we went to the food court to get a table . It was tough getting tables and chairs . And along the way , i did observe some people shunning us or simply increasing their rate of food intake. But we did get quite some tables at the end. Had a round of drinks and chat... and another round of food. I think it was a good time spnd talking to them and the kids learned much more . This would definitely be preferred , and i hope to hear some good reflections out of it.

For me , other than chatting on some technique of approach to the disabled , i got to understand some of their psyche as well. They are very sharp on protecting and fighting for their rights. Can be even confrontational sometimes. Yet , i understand that perhaps this is becoz they are mostly being underpriveledged by others , and sometimes taken for a ride. Because i was getting more aware of their demands and opportunity seeking . At one point , Mr Siva ( the leader ) was asking us if we want to take a picture to be sent to the press. I told him honestly that we have no such intention , and just want to bring them out for a good show and some food. And before that , did share to them how the money was collected by the kids to sponsor them. And all these are done by kids from a church so small ( and poor ) that they would not recognise the name. I think after that , we begin to be more genuine and they can see that we have no agendas.

Went off fast to catch a friends's wedding and drop a girl back to Puchong . ( ur friend's area ) . But i understand tat they did have the photo taken . Ok , do hope to see more of this in the future.